Food allergy update; new words

We had additional allergy testing done on Jamie in late February. The allergist did “patch testing,” where they taped little samples of suspect foods to Jamie’s back, covered in bandages and medical tape. They had to stay on for 48 hours, which wasn’t as easy as it sounds. I think the samples itched, and so did the medical tape. And they covered pretty much his entire back. Poor little guy did really well, despite being pretty uncomfortable for two days (and stinky! he couldn’t bathe while the patches were on).

The patches got applied on a Monday, and came off on Wednesday. He had a re-check appointment on Thursday. And the results?

Jamieson is officially allergic to:

  • Milk
  • Eggs
  • Wheat

… which we already knew about from the earlier scratch testing, and:

  • Chicken
  • Peanuts
  • and possibly other foods that weren’t tested

Any one of those allergies on their own would be difficult enough to deal with, but all five of them was a real punch in the gut. I think that the wheat allergy is going to be the hardest to manage. Wheat is in EVERYTHING.

It’s possible that he’ll grow out of some or all of these allergies. Most kids, do, apparently.

The struggle we’re having now is that he isn’t really interested in eating solid foods, period — or drinking much formula. We feel lucky if we can get him to eat more than a few bites at mealtime or snacktime. I think he’s just too busy learning and playing to want to stop and eat. He seems to be growing regardless, though, so I’m trying to be very zen about it and not worry too much. He’s getting a huge percentage of his calories in the middle of the night right now, which I am also trying not to stress out about.

The things that he seems to consistently be OK with eating are hot dogs, turkey, and ham. Right now he loves fresh strawberries, as well. He won’t eat bananas anymore. Vegetables are pretty much out; Doc discovered a sneaky technique that takes advantage of Jamie’s newfound interest in feeding himself with a fork. If you sandwich a piece of hotdog between two small pieces of cooked carrot, he’ll usually spit only ONE of the carrots out. He’ll eat french fries or roasted potato chunks most of the time. And we have a plethora of wheat-free crunchy snacks that he seems to like: Barbara’s Morning O’s (like Cheerios), Corn Chex, Pirate Booty (veggie flavored), and dried fruit.

He still drinks 50%-thicker Nutramigen formula, but we have begun feeding him Bright Beginnings Pediatric Soy drink when he wakes up in the night — it’s like Boost or Ensure for toddlers, and soy based. It’s a lot cheaper than his formula, and he doesn’t notice at night that it’s different. He generally resists the soy drink during the day, but we are slowly attempting to transition him completely away from Nutramigen since it’s really for babies, not toddlers.

He still generally wakes twice per night, but it’s usually very easy to get him back to sleep. This is a HUGE change, and one I am immensely grateful for. Broken sleep is still not easy for me to handle, but I can maintain our current easier schedule for a long while if I need to.

Not food-allergy-related: He now has four words that he consistently uses! He’s had daddy/dada and mama down for a while now. Tuesday night he started saying “ham” — how cute! And yesterday he added “hi” to his repertoire.

3 Comments

  1. Pingback: When Bird Allergy Flies Your Way | Garden Bird Feeders

  2. Laura

    Wheat?! NO fun at all. Hang in there. He looks great from your pictures so I’m sure he’s getting enough. I have to tell myself the same thing when I calculate Aiden’s ounces per day. It scares me but he’s still growing..

Leave a Reply

Your email address will not be published. Required fields are marked *